Deciding on the treatment plan

Everything was organised promptly after we’ve learned the diagnostic – even though it seems like ages for us. We’ve been referred to meet an oncologist the following Wednesday (5 days later), and I was scheduled for a biopsy before we met him.

The oncologist confirmed the cancer (clear cell renal cell carcinoma), and took us through the various treatment option, including a new clinical trial he’s supervising, asking us to take our decision in a week.

This is obviously a though one, especially when you don’t have the medical background to know more about each option. So, my wife and I started gathering documents, reading, talking to friends and family (especially those in the medical field), and more. In addition, we decided to get a second medical opinion, as advised by many, including our oncologist.

Getting a second opinion and choosing the treatment

We flew to France to get a second opinion at the IGR. We’ve learnt they’re also running a similar trial, and they also suggested to go this route, versus the other traditional options.

We thought a lot about it, its implications, and eventually decided to apply for the trial. Not-only for the possibility of trailing a new drug combination, but also for the close monitoring during and after treatment.

The trial information sheet

The other question was whether to be treated in France or in Ireland. After further considerations, we chose to stay here, where we have our jobs, our friends, where our kids go to school or creche and have their social circles – while it’s still easy for relatives and friends to come and visit us. Yet, moving back to France would be like starting a new life, in addition to the treatment.

So here am I, currently enrolled in the trial application process, and going through new exams (biopsy, CT scan, bone scan, blood tests), and discussions to see if I’m eligible. Fingers crossed.